Meeting with Roche Representatives: Supporting Children with Rare Diseases

On July 4, 2025, a working meeting was held at the Permanent Mission of Turkmenistan to the United Nations Office in Geneva with representatives of the Swiss pharmaceutical company La Roche. The discussions focused on ongoing joint projects with the Turkmen side aimed at providing medical support to children suffering from rare diseases such as hemophilia and spinal muscular atrophy (SMA). As part of these initiatives, patients are receiving essential medications that significantly improve their quality of life and help reduce disability. The meeting also addressed long-term therapy provision, training of medical specialists, and transfer of diagnostic materials. Roche representatives confirmed the company’s readiness to continue cooperation on a sustainable and long-term basis.